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Rogi Riverstone	Sun, Jul 5, 2009 at 2:48 PM
To: Shela Silverman
I didn't ask for the computer for my personal use. I was using my printer for the LC until it broke! I can't afford to repair or replace it. OUr LC has a computer. The office it was in was closed; the computer was sent for repairs, etc. NOBODY in Ft. S. has the administrator's password, so we can't download anything! Bullsht! I can't even put OpenOffice.org on it; it has no microsoft office software on it; nobody paid for that. It's a friggin mess. I can't read attachments people send. I don't think I can even read PDFs on it; I don't remember, but I don't think it has Adobe. I've just emailed our LC yesterday, asking where the computer is and when and where it will be set up. I also said we'll need a scanner, copy machine, office supplies and fax. Lisa, our admin, has access to those at the county annex building, but WE are not allowed to use them, as they're actually county property! We BOUGHT a printer for that computer; nobody knows where it is now and doesn't seem to care enough to look for it. It's going to be a big challenge, getting the paper pushers to hook our computer to the internet. They always make excuses; nobody wants to pay for the DSL. There WAS internet, where it was. That was the mental health office. It's been closed because, I've heard, of insurance costs. They're calling it a "wellness center" now for people who drive in and do health checks, like the mamogram wagon that came through here recently. I don't understand; the clinic just got a big grant. It was reported in the CLOVIS newspaper, but not here. I'm trying to get Paul, that guy you met, online with an email address, since he wants peer specialist training, etc. The county extension office is where our LC admiin. person works. She says the county won't allow her to print, fax, etc. for us, except standard stuff like meeting minutes, agendas, budget reports. It's been a big hassle, getting any office work done here. Lisa only works part time for us; she has a full time job with the county 4h program. That's why I had to apply for the MHA scholarship by using the Chamber of Commerce fax machine. That's why I WAS using the De Baca County News paper office, until that redneck screamed and cursed at me for no reason, except that he doesn't understand plain English and accused me of something off-the-wall that had nothing to do with me. There's a dozen computers, sitting in a room, not hooked up anymore, that were supposed to be for people in Housing Authority to use. NOBODY will take responsibility for getting people in the town access to them. Frank Chevalier (consumer in Clovis) helped set them UP! The library is a nightmare; we're certainly not welcome there! I didn't know you wanted a formal meeting with other consumers, because you didn't say that. I told people you were coming and asked if they'd like to meet you. One was Kathy, another was Clora. I'd forgotten about Paul, but we ran into him, so that's cool. I thought I'd take you on a tour and introduce you to everybody, but you didn't want to do that. Plus, you had that crisis call; you couldn't anticipate that. They knew you were coming, we just didn't know what time, etc. Things are real casual here; if you want to talk to somebody and you're driving in town, give em a call or just drop by. They'll tell you if they're busy. I didn't have much information about why you were coming. I was going to show you possible sites for a drop in center, show you the clinic (where we may be able to get space?), introduce you to Clora and Kathy and maybe Lorie, if she's ever home. I wanted to show you other places in town that are SUPPOSED to have public resources to which we have no access: the rural public transportation van and the computers were 2 of them. They're here; we just CAN'T USE THEM!!! I had misunderstood you in DC. I thought you worked for an agency that would train me and begin employing me (and pay for my internet, 1/10th of my mothly income) so I could travel to other towns in the county, as well as organizing in Ft. S, as well as doing advocacy and helping people access resources and services we need, individually and collectively. Yeso, House, Melrose and Taiban -- and some others I can't remember -- as well as the people living at Lake Sumner are all De Baca County residents & need our help, too. I'm still not seeing how, when and where we'll be trained. I don't know how many days it is, I don't know if I'll need to pack meals. if it's in a row, how I'll pay for housing and gas money to and from what city, etc. That info isn't available on any websites I've seen. Frank has a job with the county, doing maintanance and gardening. I'm hoping training won't conflict with his work commitments, and that we can carpool, and that his vehicle's in better shape than mine. I also had no way of knowing that you only speak with consumers. I understand it, I just didn't know it. Several people who work with consumers said they'd like to meet you, incl. the police chief. Our police chief is us consumers' first line of defense against the bosses of this town. He's the most respectful, accepting member of the community here who has power and authority. He could be a real bastard and we're really lucky. If someone's acting out, he'll arrest them, but only if he absolutely has to. He'd rather resolve things peacefully, by diplomacy. The sherrif's a pig. I've been involving people for a year now, since my first LC meeting. I've had no training and no support from anybody with access to training. I'm new in town, but I'm interfacing as often as possible with consumers in the county. Mostly, I've been listening between LC meetings to what people's issues REALLY are, and reporting them back to the LC, where they won't speak, of course. Because of that, our LC has made transportation and behavioral health civilian first responders their top, two priorities for the year. You may be disappointed, but I think the shift from apathy, suspicion and passivity to planning, speaking out and peer support has been phenomenal over the past year. I'm not being egotistical here, but I have facilitated, encouraged and nurtured that. You can get 200 consumers to a meeting in Las Vegas, but you have a state hospital and a population of 14,500. That's a bit over 1% of your general population. We manage between 12 and 20 consumers to a meeting in Fort Sumner, but we have a population of 1,200 and only a family clinic. That's a little over 1% of our general population. The nearest hospital is over 100 miles away. So's the nearest community college, and ENMU is farther away even than that. There's no such thing as civil or human rights in Fort Sumner, nobody to call for justice or fairness -- for ANYBODY who isn't a descendent of the founding terrorists -- or their friends. Most of the consumers that live here only do because they're too poor and too beaten down to escape. They can't leave; they've got no place to go. I'm trapped here, too. But, if it wasn't for the consumers, I'd have left by now. Don't know how and don't know where, but I wouldn't be here, for sure. I've been harassed, threatened, insulted, verbally abuse and ASSAULTED by these sons and daughters of the founding families of this death camp for Native people! Considering our LC chair can't chair a meeting to save his life and has lost total interest in the LC now that his rehab project has grant money, since the primary organizer for our LC is actually Jesse Chavez, since the most active family member in our LC is a shrill, judgmental, abusive, in-denial CONSUMER with a big chip on her shoulder and a gun, since, until I showed up, no consumer with any sense would say a WORD during the meetings I'd say we're doing pretty well, actually. YOU know what you mean, but I do not. I need clear and concise information. In DC, you'd said you could help me with American Airlines, but you didn't reply to the email I sent about it. This LC has made it TORTURE for me to participate in training, conferences, correspondence, reimbursement etc., etc. I almost quit last winter, when I rationed my food to 1 meal a day, because the LC dragged its feet and wouldn't get me $ for a damn rental car to attend a conference in Albq, where I could shop! I didn't know 'til the day before the conference whether I could get there! I got the funding approval letter the LAST day of the conference! Frank Chevalier put the rental car on HIS PERSONAL credit card, and I paid him back out of my reimbursement, which I got two weeks after the conference!! They'd known I was going for months! It's bad enough the decendents of the founding terrorists treat me like dog poop on their shoes. This LC doesn't even have my back! I'm one, little human being, with little formal education, in pain and living with emphysema, a brain injury and PTSD, with rotting teeth and a bad memory. I have nobody here who loves me. If I died today, nobody'd discover the body for weeks. I live on less than $800 a month and my rent is $300. I smell raw sewage under this trailer, but my landlord has disappeared and I can't do anything about it except stop using the toilet where it smells and use the one at the other end of the house. I spent all winter without a vehicle except my electric bicycle, unable to shop at the only grocery for fifty miles. The house had no heat. My "friends" from Albuquerque have all abandoned me, because I'm "too much trouble." I'm stranded here, alone, sick and poor. I'm doing everything I know how to make the best of it and to improve MY quality of life by working to improve EVERYBODY's quality of life. Last week, I had to white knuckle it through another acute bout of suicidal depression, all alone up here. Jsus! What more can I do besides what I am doing: networking, studying, discussing, researching, emailing, telephoning long distance at MY EXPENSE, driving that decrepit truck that NEEDS repairs I can't afford to Albuquerque twice in one month with gas I can't afford, to be treated like scum by affluent conference organizers who wouldn't know "mental" health if it bit them in the ass. On top of all that, I'm trying to produce radio! I don't even have a decent space for a recording studio! Trucks rumble down the highway outside this tin box with no foundation. The transcontinental railroad passes all day and night. I have styrofoam I found in the trash and a piece of dirty "egg crate" foam that blew down the road one day, to pretend I can "sound proof" my bedroom closet well enough to record narrations and scripts! The nearest radio station is over a hundred miles from here, and THEIR equipment sucks: it hums! But I'm going to apply for grants from the Carter foundation and the National Endowment for the Humanities -- AND the Paul Robeson Foundation -- to produce a documentary on Mad Pride! I can barely CHEW my teeth are so bad. I sound like sht on a microphone. So, if you're disappointed, I'm sorry. I don't have a cape; I'm not a super hero. I'm just a survivor, doing anything I can to help myself, while my mother's voice whispers, "you're no damn good; you're not worth the lead to shoot you; I wish you'd never been born; you'll never amount to anythng" and I struggle not to swallow a gun.

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Rogi Riverstone

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De Baca Co. consumers' needs
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Rogi Riverstone	Sat, Jul 4, 2009 at 12:53 PM
Lisa, As I'm not sure which addresses are whose, would you mind sending the following message to LC 10 participants in De Baca County, either by email or USPS, as necessary? It is particularly important that consumers receive it. Thanks! Hello, Last week, I had a meeting with two consumers from Las Vegas, NM. Here's a website about them: http://site.mentalhealthconsumer.org/Home.html We discussed the feasibility of a behavioral health drop in center for Fort Sumner. We agreed that the Village is not yet ready for such a center -- although it needs one very badly. The primary reason for this is that De Baca County consumers are not yet organized enough, although we certainly can be, with some commitment, time and patience. The by product of this is that there is still too much ignorance and stigmatisation of behavioral health issues here to expect much community support right now. Also, we don't yet have the person power to provide needed services that could be supplied by such a center. And we don't have enough familiarity and experience with each other to know whose talents and skills can do what. We discussed a remedy to this: begin organizing behavioral health consumers as soon as possible, so we can begin educating ourselves and our fellow citizens on behavioral health issues, resources, needs and problem solving in the county. As a result, I've met with three consumers this week. We all have energy for organizing and had very productive preliminary discussions. We have agreed we need the following from De Baca County LC 10 core to begin. First, consumers need to meet on our own. We need to discuss our needs and concerns amongst ourselves, with our own agenda. We feel more comfortable talking with each other without the presence of providers and family members. It's not that we don't respect them or want to work with them in the broader BHPC LC 10. We need an atmosphere in which our agenda is of primary concern. We need not to have to worry about how someone else might interpret what we say, therefore remaining silent. We need meetings that focus primarily on us, not what the state, providers, family members or anybody else finds important. We need to decide what we think is important. After all, "behavioral heath" is about us. Historically, consumers have often had to acquiesce to the agendas of providers and family members. In the most extreme cases, we have needed their approval for our very survival. We have learned not to speak up for ourselves, lest we -- especially unintentionally -- alienate, offend or anger providers and family members who might either withdraw support or punish us if they feel threatened by our assertions of independent thought or accidentally suspect our motives. We need to speak freely among ourselves. We already do this , between meetings. We feel a sense of frustration that the focus of many meetings is not on our concerns and implementation of solutions to our problems. This is particularly true in a small village, where we are so vulnerable to the whims and agendas of a very small group of "authorities" who can exert power over us. If we alienate one source of support, there aren't many or, often, any other alternatives to which we can turn in the Village. We propose that these be the meetings at which consumers are paid stipends. This would provide incentive to new people who attend and defray their costs and inconvenience. There is precedence for this. The Las Vegas, NM consumers meet independently of their collaborative, and send several consumer representatives to their LC. These representatives are scheduled as a regular agenda item in the monthly meetings. They bring their needs, concerns and proposed solutions before the larger body. And they report back to the consumer meeting what occurs in the collaborative meeting. That way, every consumer doesn't have to sit through agenda items in which they may not choose -- or be able -- to participate; they know they'll have a place, time and opportunity in which they can focus on their concerns primarily. We could also arrange these meetings in venues that are accessible and comfortable for us and, as necessary, accomodate people whose participation might be limited to telephone or internet access because they won't be attending in person. Second, I am applying for training as a Peer Specialist. Another person is interested in applying, too. The two other people with whom I spoke this week are not interested in committing to training, for very good reasons. But they support us in being trained. One is a life-long resident of the village who is far more appropriate to discuss such intimate and intimidating issues as behavioral health, one-on-one, with village residents than I. I have skills in public presentations, but would probably be seen as an outsider in personal conversations. We have agreed that I can teach what I've learned from my training to others such as this person, so people more suited to these conversations have the skills they want in order to be supportive. Lastly, we need the BHPC LC10 computer online and ready for use. Some of us have no computers. We need to receive and send applications, correspondence, email, faxes, letters, scanned documents and attachments into and out of the Village. The public library is extremely problematic; several of us have not been treated well there. And the BHPC LC 10 computer was purchased exactly for this reason. Some of us don't want passers by in a public place to see what websites we're researching; we need quiet, privacy and minimal distraction and interruptions. This needs to happen immediately. We'll want to access the computer sometimes for meetings, too, so we can show each other online resources. Since the mental health clinic closed and the computer has been serviced, we have no idea where it is now or how to access it. We also need that printer nobody can find, or a replacement. I may know of one we can get for the cost of shipping it here. We'll need a scanner, access to a fax machine, postage and printing. We'll need access to office supplies for mailings, fliers, etc. We have a good base of experienced consumers who have attended LC 10 meetings for awhile now. We know what the LC 10 is and how it operates. We are ready to begin proactive recruitment, organizing, problem solving, networking, resource accessing and, sooner than later, funding for our projects. Jesse Chavez might be able to assist us in a good portion of initiating the consumer meetings, or can direct LC 10 to the tools we'll need to actualize this. He can contact Las Vegas' LC for details on consumer meetings. The website I've cited provides contact information. We consumers are willing and able now to roll up our sleeves and get to work, initiating projects for our needs. Let's get started. Rogi Riverstone

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why Bill West doesn't belong on BHPC LC 10

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Rogi Riverstone

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	Sun, Jun 21, 2009 at 2:29 PM
Upon my return from the National Rural Mental Health Conference yesterday, I spoke with 2 friends in town about this past LC 10 meeting. They told me Jesse Chavez specifically suggested inviting Bill West, manager of Citizens' Bank of Clovis, Fort Sumner Branch, to our meetings. I HIGHLY advise against this. Mr. West has a long history, both as a bank manager and a rental property owner in this town, of abusing and exploiting people with behavioral health challenges and their families. He has a long track record of treating our elders, our disabled and our economically disadvantaged citizens in Fort Sumner (in other words: the majority of us) with contempt and hatred. His banking practices, with economically vulnerable consumers, are predatory: he exploits us for his gain. Rather than being humbled by and grateful for his fortunate position in town, he sees himself as superior to the rest of us. Despite the "Jesus" fish on his office wall, he has, apparently, never read the red parts of the Bible in which Jesus admonishes, "Whatsoever ye do unto the least of these, that you do also unto Me." I call it, "selective christianity," which I refuse to capitalize, as it's no reflection of Christ-like morals, ethics or ECONOMICS (remember the tables of the money-changers in Jeruselum?). In fact, I usually spell it, "selective xianity." Jesus is no where in it. In one incident, he came to some one's home with his assistant, whom he had knock on the front door while he ran around back, so the person inside could not, presumably, escape. I will not tell you whose family this was without permission, which I have not yet solicited. They'd come to collect a MODEST debt. They wanted to do it before the terminally-ill person had a chance to die (the person died within two weeks of this incident). They humiliated and threatened the person and several family members -- INCLUDING THE DYING PERSON'S MOTHER -- to get the money. They suggested that this person pitch HAY to earn the money, although this person was dying of liver disease and cancer, was yellow in color and could barely move, due to severe edema all over the body. They tried to cajole a family member into paying off the debt for the dying person. THEY TRAUMATIZED THE ENTIRE FAMILY, who STILL talks about the incident with grief and pent-up rage, to this day, although the incident happened quite a few years ago. The mother struggles with chronic depression and this traumatic memory was, in her estimation, a contributing factor. Recently, my account became overdrawn. Mr. West treated me with contempt and impatience over an $18.00 overdraft. When I explained that I have difficulty with the non-chronological bank statements, when I said the typeface was too small and faded to read without magnification, when I pointed out that the online statements were just as bad, Mr. West shrugged it off as my problem. It would take me hours, every month, to write out all my transactions and balances in chronological order, in order to comprehend them! When I explained that I don't comprehend numbers as others do, that I could use a bit of assistance with understanding my check book balancing, he said, "We're not a bookkeeping company; we don't provide that service." My banking needs are extremely modest; I don't require formal bookkeeping. I just need a teller to double-check my figuring a couple of times per month for, maybe, five minutes each. Other banks have done this for me for years. I've seen Citizens' do it for other customers! Turns out, the overdraft was NOT my fault. It was a BOOKKEEPING ERROR ON THEIR END. It was not the first. I've banked at Citizens' Bank of Clovis for less than a year now. This was the SECOND TIME they paid a check I'd written twice. They've also credited one deposit twice. I've had bank accounts all over the country, in at least a dozen banks, since I was 17 years old. I've had a savings account since I was three, and made deposits myself. I'm 53 now; that's 50 years. I've never had ONE incident like this, let alone THREE, in all that time until I began banking at Mr. West's branch of Citizens'. I was patient and understanding, all three times, even when 2 of those times got me overdraft charges I had to wait to have the bank reverse, tying up my money! I never looked at Citizens' employees or Mr. West the way Mr. West looked at me that day I was overdrawn; pure contempt and smug arrogance exuded from his eyes. It was humiliating. And he refused to acknowledge that I need reasonable accommodation of my disabilities in order to bank safely with Citizens'. I sent him the attached email. I received no reply: http://fortsumnernm.blogspot.com/2009/05/accessible-banking.html I've received no apology, either. And my bank statements are still incomprehensible to me. I will have to close my account at Citizens' in Fort Sumner, in order to protect my finances and reputation from further damage. I get paid for freelance work: checks that are mailed to me from all over the country, not automatically deposited into my New Mexico Bank & Trust account. I am economically vulnerable and, frequently, need those monies immediately. The nearest branch of NMBT is in Melrose, 80 miles, round trip or $20 gas. I opened an account at Citizens' here just for the purpose of depositing or cashing freelance checks. For months, I had no vehicle with which I could have made the trip to Melrose. If I close my Citizens' account, it will cause me a great deal of inconvenience. But it will preserve my dignity, my reputation, my finances and my peace of mind. My economic vulnerability has, frequently, left me traumatized and desperate; I don't need Citizens' and Mr. West to exascerbate that! I'm just so grateful I did not have my Social Security Disability Insurance check direct deposited to Mr. West's bank, but kept it at NMBT! It is the major source of my monthly income and I do not want Mr. West's bank playing fast and loose with that! Bill West is a MAJOR contributor to this community's behavioral health disabilities! Until and unless he approaches LC 10 with humility and inquisitiveness about behavioral health issues and offers to contribute positively to healing them -- AT HIS OWN BANK and ON HIS OWN RENTAL PROPERTIES -- I see NO benefit to allowing the fox into the henhouse! Consumers and family members will feel resentful, intimidated, alienated, SILENCED and unwelcome! This includes nearly ever consumer and family member currently involved in LC10! We don't need him; we don't want him. Some of us will quit LC 10 if he gets involved! For Mr. Chavez to have suggested Mr. West to LC 10 -- without ever considering the man's impact on behavioral health in Fort Sumner -- is beyond insensitive. Rogi Riverstone

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we need a drop in ASAP

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	Sun, Jun 21, 2009 at 8:15 AM
Sheila, As I drove home from the Rural Mental Health Conference yesterday, I felt a profound sense of hope and purpose. Federal agencies begged us to take their money in forms of grants. Other rural activists were doing phenonenal things with limited resources. Consumers were advocating for dignity, quality of life and progressive changes. I went to Clora's house before I checked my place or put away my groceries. Clora and Kathy, both very active in BHPC LC10, infomred me of the "doings" at the last meeting, of which I could not be a part, as I was in Albq. at the conference. Lo and behold, Jesse Chaves (our BHC state rep), Lisa Walraven (our admin. staff) and Emory Crawford (our LC chair) had been "back channeling" among themselves with their own agenda. They want to reduce the number of meetings over the next, 3 months by eliminating individual counties' meetings. They want to do away with $25 stipends to community members who participate in meetings. They want to invite certain community members (BY NAME) who have truly abused consumers in De Baca County's group (One is our bank mgr., who treats us like GARBAGE if we're not middle class and has caused real trauma to some of us). They are considering handing out walmart gift cards rather than stipends. To this last, I replied with an email last night, detailing some of walmart's contributions to behavioral health crises on a global scale. I also pointed out that OptumHealth is in bed with walmart on a pilot project re: generic psychotropics in the state of New Mexico! In another email, I have demanded not only minutes from the last meeting, but the tape recording as well. I demanded this and last years' budgets. Some things don't appear on the budget. These include everything from office supplies to snacks for meetings, and I can't guess what else. I also want to know decision-making procedures and laws, regulations, etc., as well as voting procedures. People have QUIT our local collaborative over the issues at last week's meeting. The agenda was stuffed at the last possible moment, when they KNEW I'd be out of town and unable to attend. Consumers refused to vote until and unless I could participate in discussions, and that was ignored. I don't remember names well, so forgive this. I met a woman at the conference who lives in Taos. She's very active in Community/peer organizing. She wants me trained as a consumer/peer advoate or whatever ASAP. I think she said trainings happen in Los Cruses and Albuquerque. Well, Kathy wants training, too. She's so mad and frustrated, she can't see straight. Clora is devistated and depressed. When I explained it would be OUR drop-in center, run and staffed by us, with access to resources from all over, that it doesn't need to be open 24-7 and that it won't take away Social Security benefits from any of us in order to operate, even shy, beaten-down Clora offered to staff it a couple of hours a week. Her depression shifted to outrage and her outrage shifted to motivated activism in less than an hour. I didn't influence it; she did it on her own. When I explained that government agencies came and begged us to apply for grants, and gave specific instructions and contact information to individuals, they both understood that the laziness, apathy, bean counting and paper-pushing of Emory, Lisa and Jesse is NOT NECESSARY for us. I'm not going to wait for another BHPC meeting to schedule you to come speak to us. You let me know when we fit into your schedule, and I'll find a place we can meet, even if it's my house. Rogi Riverstone

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Is Wal*mart good for Behavioral Health?

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	Sat, Jun 20, 2009 at 10:22 PM
I encourage ALL of us who care about healing behavioral health challenges to watch "Frontline: Is Wal*mart Good For America," an investigative journalism report on PBS, which aired in 2005. http://video.google.com/videoplay?docid=6281757350710695719&ei=jrM9StjiG6juqQLWtcneCg&q=wal*mart&hl=en&client=firefox-a Wal*mart should not be associated with State of New Mexico Behavioral Health Planning Council Local Collaboratives in any way. It causes rampant poverty, suffering, injury, distress and insecurity to workers, children, families, communities and the environment. Wal*mart is, globally, the largest contributor to behavioral health disorders in human experience. If BHPC LC10 gives out Wal*mart "gift" cards to participants in its meetings, we are endorsing and encouraging our own destruction as consumers and family members. Wal*mart's side effects will, however keep practitioners in the medical industrial complex well employed. If an individual chooses to shop at Wal*mart, she probably does so because the following information isn't available to her OR Wal*mart has already so devistated her local economy, she thinks she has no other options. While I will encourage her to explore options she may not have considered, I do not hold her at fault for an uninformed decision in an age where news is corporately sponsored and commercials dominate the public discussion of values. I DO, however, hold BHPC LCs accountable for promoting a TAXPAYER SUBSIDIZED multinational corporation that makes people, communities, countries and the planet sick for profit. WE should KNOW better! Discriminates against women http://www.spokesmanreview.com/tools/story_breakingnews_pf.asp?ID=2423 ========================================= OptumHealth in bed with Wal*Mart: BHSD Medication Fund The BHSD Medication Fund has been available to consumers since July 2007. A total of $920,000 per year is available to use to pay for medication for those meeting the fund criteria. There was low utilization in FY08, but dramatically increased awareness and use of the fund caused a depletion of the fund before the end of FY09. OptumHealth New Mexico would like to present the following plan for the Medication Fund in FY10. This plan will maximize the number of consumers that have access to the fund while allowing for predictable use of fund dollars throughout the entire fiscal year. This plan has 2 parts. The first part, or the Medication Fund, will serve approximately 870 consumers in one year. The plan will have limitations as outlined below to maximize the number of consumers that benefit from the fund and to assist with fund management throughout the entire fiscal year. The second part, or the Low Cost Generic Plan, will be a pilot project utilizing the WalMart low cost generic program. $50,000 will be set aside for this pilot project although this amount could be adjusted depending on overall utilization. Approximately 1000 prescriptions per month could be filled using this plan. Specifics of both plans are outlined below. http://www.bhc.state.nm.us/pdf/SC/Behavioral-Health-Services-Division-Med-fund.pdf ================================================ Wal*mart abandons its operations as quickly as it puts them up: Susan Leonardi, who’s worked at the center for 14 years, said she feels wronged by her employer and that a “very wealthy conglomerate” such as Wal-Mart could have afforded to expand here. “They’re going with a third party because it’s cheaper labor and they don’t have to pay benefits. ... This old dilapidated building we were in couldn’t hold it, but you can’t tell me there wasn’t land available so that Wal-Mart couldn’t keep their Wal-Mart associates working,” Leonardi said. “I know business is business and it’s not supposed to be personal, but don’t tell me it’s not personal when I’m out of a job.” http://www.macon.com/198/story/619328.html ========================================= Wal*mart is COLLECTING ELECTRONIC MEDICAL RECORDS OF CUSTOMERS: http://www.medicexchange.com/Health-Informatics/wal-mart-emr-debuts-in-virginia-illinois-and-georgia.html ================================================ A Substantial Number of Wal-Mart Associates earn far below the poverty line Wal-Mart Associates don't earn enough to support a family Wal-Mart forces employees to work off-the-clock Wal-Mart's Health Care Plan Fails to Cover Over 775,000 Employees All of Wal-Mart's Health Plans Are Too Costly for Its Workers to Use Wal-Mart Admits Public Health Care is a "Better Value" President and CEO Lee Scott said in 2005, "In some of our states, the public program may actually be a better value - with relatively high income limits to qualify, and low premiums." [Transcript Lee Scott Speech 4/5/05 Wal-Mart Increased Advertising More Than Health Care Your tax dollars pay for Wal-Mart's greed The estimated total amount of federal assistance for which Wal-Mart employees were eligible in 2004 was $2.5 billion. [The Hidden Price We All Pay For Wal-Mart, A Report By The Democratic Staff Of The Committee On Education And The Workforce, 2/16/04] One 200-employee Wal-Mart store may cost federal taxpayers $420,750 per year. This cost comes from the following, on average: $36,000 a year for free and reduced lunches for just 50 qualifying Wal-Mart families. $42,000 a year for low-income housing assistance. $125,000 a year for federal tax credits and deductions for low-income families. $100,000 a year for the additional expenses for programs for students. $108,000 a year for the additional federal health care costs of moving into state children's health insurance programs (S-CHIP) $9,750 a year for the additional costs for low income energy assistance. [The Hidden Price We All Pay For Wal-Mart, A Report By The Democratic Staff Of The Committee On Education And The Workforce, 2/16/04] The Cost of Wal-Mart's entry into a community can be significant According to a 2003 estimate, the influx of big-box stores into San Diego would result in an annual decline in wages and benefits which could cost the area up to $221 million [San Diego Taxpayers Association (SDCTA), 2003] Wal-Mart hurts other businesses when it comes to town. In towns without Wal-Marts that are close to towns with Wal-Marts, sales in general merchandise declined immediately after Wal-Mart stores opened. After ten years, sales declined by a cumulative 34%. [Kenneth Stone at Iowa State University, "Impact of the Wal-Mart Phenomenon on Rural Communities," 1997] Wal-Mart destroys the environment Between 2003 and 2005, state and federal environmental agencies fined Wal-Mart $5 million. Wal-Mart's empty stores are blighting communities Wal-Mart's rapid expansion of Supercenters and Sam's Clubs has contributed to hundreds of vacant stores across the country. ["Wal Mart site: Use as is or rebuild?", Dallas Morning News, 2/20/02] When Wal-Mart decides to convert a discount store into a larger Supercenter, it is often cheaper or easier simply to relocate entirely. David Brennan, associate professor of marketing at the University of St. Thomas, in St. Paul, Minn, noted that Wal-Mart stores relocate so regularly that, "it is not uncommon to relocate right across the street." ["Home Depot to Move from Old to New Store Next Door," Providence News-Journal, 8/17/03] Wal-Mart and Imports 70% of the commodities sold in Wal-Mart are made in China. [China Business Weekly, November 29, 2004] Just because Wal-Mart bought goods from suppliers based in the United States does not mean that they were actually manufactured in the United States. In fact, Ray Bracy, Wal-Mart's vice president for federal and international public affairs, was asked, "Do you have any idea what percentage [of non-grocery, domestic sales] comes from overseas?" He responded, "What we don't know is the numbers of products that come from distributors or from manufacturers that they [sic] decide where to manufacture." Wal-Mart fails to track where their products are manufactured. [Frontline, 11/16/2004] Wal-Mart's Chinese factory workers are treated poorly Workers making clothing for Wal-Mart in Shenzhen, China filed a class action lawsuit against Wal-Mart in September 2005 claiming that they were not paid the legal minimum wage, not permitted to take holidays off and were forced to work overtime. They said their employer had withheld the first three months of all workers' pay, almost making them indentured servants because the company refused to pay the money if they quit. [New York Times, September 14, 2005] Workers making toys for Wal-Mart in China's Guangdong Province reported that they would have to meet a quota of painting 8,900 toy pieces in an eight hour shift in order to earn the stated wage of $3.45 a day. If they failed to meet that quota, the factory would only pay them $1.23 for a day's work. [China Labor Watch, December 21, 2005] Elsewhere workers producing goods for Wal-Mart also face appalling conditions, despite Wal-Mart's factory inspection program Workers from Bangladesh, China, Indonesia, Nicaragua and Swaziland brought a class action lawsuit against Wal-Mart in September 2005 asserting that the company's codes of conduct were violated in dozens of ways. They said they were often paid less than the legal minimum wage and did not receive mandated time-and-a-half for overtime, and some said they were beaten by managers and were locked in their factories. [New York Times, September 14, 2005] A female apparel worker in Dhaka, Bangladesh, said she was locked into the factory and did not have a day off in her first six months. She said she was told if she refused to work the required overtime, she would be fired. Another worker said her supervisor attacked her "by slapping her face so hard that her nose began bleeding simply because she was unable to meet" her "high quota." [New York Times, September 14, 2005] In 2004, only 8 percent of Wal-Mart inspectors' visits to factories were unannounced, giving supervisors the chance to coach workers what to say and hide violations. Wal-Mart claimed it planned to double unannounced visits by its inspectors but that would still leave 80 percent of inspections announced. [CFO Magazine, August 2005] A former Wal-Mart executive James Lynn has sued the company claiming he was fired because he warned the company that an inspection manager was intimidating underlings into passing Central American suppliers. Lynn documented forced pregnancy tests, 24-hour work shifts, extreme heat, pat-down searches, locked exits, and other violations of the labor laws of these Central American countries. [New York Times, July 1, 2005 and James Lynn to Odair Violim, April 28, 2002, Wal-Mart takes a combative approach to workers' compensation claims Arkansas Business in 2001 described Wal-Mart as "the state's most aggressive" when it comes to challenging worker's compensation claims. The company "stands far above any other self-insurer in challenges to employee claims." [Arkansas Business, 1/8/01] Wal-Mart shifts retirement costs onto communities When employees retire without adequate savings and benefits, they are less able to pay for health care, housing, and food. Communities and taxpayers ultimately bear the costs Wal-Mart violates Child Labor Laws http://wakeupwalmart.com/facts/ Rogi Riverstone

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Need BHPC LC 10 minutes

You're reading http://debacabhpclc10.blogspot.com/

Rogi Riverstone

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1 message

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	Sat, Jun 20, 2009 at 9:25 PM
Having heard of the monumental decisions discussed at the last BHPC meeting in my absence, I demand not only minutes of the meeting, but the entire taped recording of events. I want them as early this week as possible, preferably by Tuesday. I also want contact email addresses for all BHPC LCs in the state of New Mexico -- PARTICULARLY those of consumers or family members that are available to other BHPC participants. I also require contact email information for State BHPC officials; I will need to ask them some specific and serious questions about BHPC operations and decision-making procedures. I need a copy of any rules, regulations, laws, bylaws, protocols, voting procedures, meeting procedures the constitution of quorums and or majority voting requirements, decision-making methods and any other types of legal activities that constitute decision making for BHPC LCs. If I have inadvertently excluded a more appropriate word, term, definition or concept in my request, it is to be inferred that I want those included for me to study, as well. In addition, I want a copy of this and last years' budgets, INCLUDING costs for: postage and shipping, meals and snacks, serving supplies, office supplies, pagers, cell phones, land lines, long distance telephony, internet, fax, and any other forms of communications, wages and any other miscellaneous expenses. If BHPC LC 10 spent its budget on it, I want to know what it was, how much was spent and why. I want to know the names Jesse Chaves mentioned that "should" be invited to our meetings, how he -- as an outsider to our community -- got those particular names and WHY HE MENTIONED THOSE IN PARTICULAR. I want to know why Jesse Chaves is recommending a particular gas station and a particular retail outlet, and the logic behind these. I have a right to this information as an active participant in BHPC LC10, and I have a right to receive this information in a timely fashion.

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LC 10 Core group meeting

You're reading http://debacabhpclc10.blogspot.com/



This is a reminder that the LC 10 Core group meeting will be held on
Monday, March 23, 2009 at 12:15pm.

Harding County will host this months meeting at the Team Builder's
Office in Quay County. Tucumcari Team builders is located at 1110
High Street.

Video conferencing wil be available at the Team Builder's Office in
Fort Sumner located at 908 Avenue C.

Welcome!

You're reading http://debacabhpclc10.blogspot.com/

This blog has been open since Monday, February 16th. I built it right after our last LC10 meeting.

Here's my original, welcoming post, from Feb. 16:

I got to thinking: maybe a blog would be more flexible than a conventional list serv, as each of us can post articles, as well as giving comments to posts.

And we can each decide whether or not we choose to receive email notification that new things are posted here, or just visit the blog at our own convenience.

In addition, we can post video, photos, audio and links here, to create an archive of available items of interest. We can go back more easily and access these, without going through fifty thousand old emails, since they'll be categorized, easy to access, by topic.

Please email me info about any calendar events you'd like me to post on the side bar.

Email me, so you can create content for this blog.

There will be a little, orange link, "Subscribe to: Posts(Atom) at the bottom of this blog, where you can sign up for email notifications of new posts and/or comments to posts.

I'm setting this up so that anybody can comment on posts. I'll approve comments. I won't edit them. Everybody will be allowed to comment who is active in any aspect of BHPC. Any spam, harassment by abusive strangers, etc. will be things I'll not approve as comments.

I STRONGLY advise that you DO NOT publish personally-identifying information about yourself (or others, without their knowledge and consent) in this blog! Dates of birth, phone numbers, Social Security numbers, addresses, children's personal info, etc. will all be visible to anybody on the 'web. Just keep it in mind.

If a meeting or event is to be held at a private home or property -- rather than our usual meeting places, just say, "John Doe's house," and request that people comment to the blog post, if they need directions.

Any thoughts, suggestions, available resources, etc. would be appreciated.

Also: I could sure use an accurate description of LC10 to place in the "About Me" section of this blog!

Thanks,

Rogi

"Brainstorm" airs tonight. Why's that important?

You're reading http://debacabhpclc10.blogspot.com/


Let me explain why this is so validating for me.

The show it airs on is called, "Arts and Ideas Radio." It's produced by Jay Allison.

Who's Jay Allison?

Ever listen to "This I Believe" on NPR on Sundays? That's Jay Allison.

Ever hear of Atlantic Public Media? That's Jay Allison.

Ever hear of WCAI & WNAN? Jay Allison is a founder of both stations.

Ever hear of http://transom.org (the FIRST website to ever win a Pulitzer)? That's Jay Allison.

Ever hear of http://prx.org ? That's Jay Allison.

Ever hear of "Nightline?" The real one, with Ted Koppel? That's Jay Allison.

You cut this guy, he bleeds documentaries and diodes.

He picked out "Brainstorm" from a SLEW of independently produced pieces (by people with far more experience, education, productions, connections and polish than I) over on PRX, where "Brainstorm" is listed.

Jay Allison picked something I produced to air on his show. He picked something I care about deeply, that affects me, personally, to air on his program.

http://www.jayallison.com/

I can't think of better validation, except that Paul Ingles has supported it -- and me -- enough to encourage me to offer it on PRX.

This is the biggest thing that's ever happened to me as a radio producer. It means I'm swimming in the deep end now.

http://debacabhpclc10.blogspot.com/2009/03/brainstorm-experience-of-brain-injury.html

--
Rogi Riverstone

Developmental Disabilities 'Net Resources

You're reading http://debacabhpclc10.blogspot.com/



DISABILITIES: DEVELOPMENTAL DISABILITIES: Centers for Disease Control and Prevention.
Developmental Disabilities: Topic Home
<http://www.cdc.gov/ncbddd/dd/default.htm>

Developmental disabilities are a diverse group of severe chronic
conditions that are due to mental and/or physical impairments. People with
developmental disabilities have problems with major life activities such
as language, mobility, learning, self-help, and independent living.
Developmental disabilities begin anytime during development up to 22 years
of age and usually last throughout a persons lifetime.

More
<http://www.cdc.gov/ncbddd/dd/dd1.htm>

Developmental Disabilities

Developmental disabilities are a diverse group of severe chronic
conditions that are due to mental and/or physical impairments. People with
developmental disabilities have problems with major life activities such
as language, mobility, learning, self-help, and independent living.
Developmental disabilities begin anytime during development up to 22 years
of age and usually last throughout a persons lifetime.

Developmental disabilities activities at CDC include:

Studying how common developmental disabilities are and who is more likely
to have them

Finding the causes of developmental disabilities and the factors that
increase the chance that a person will have one

Learning how people with developmental disabilities can improve the
quality of their lives.

CDCs activities focus on:

Autism spectrum disorders


Cerebral palsy


Hearing loss
<http://www.cdc.gov/ncbddd/dd/ddhi.htm>

Mental retardation
<http://www.cdc.gov/ncbddd/dd/ddmr.htm>

Vision impairment
<http://www.cdc.gov/ncbddd/dd/ddvi.htm>

Efforts to improve the health of people with developmental disabilities

People with disabilities can live healthy lives. There are many federal
and federally-funded programs that help people learn to live well with a
disability. CDC has put together a list of some of these programs,
including links to their Web sites so that you can learn more about them.
[Read about improving health]

Resources for people with developmental disabilities and their families

CDC does not study education or treatment programs for people with
developmental disabilities, nor does it provide direct services to people
with developmental disabilities or to their families. However, CDC has put
together a list of resources for people affected by developmental
disabilities. [Go to the resources list]

Developmental disabilities activities at other federal agencies

CDC is not the only federal agency that has developmental disability
activities. Click on the links below to learn about the activities at
other federal programs. Many of these sites have some information in
Spanish.

Administration on Developmental Disabilities (ADD)
<http://www.acf.dhhs.gov/programs/add/>

ADD works to ensure that people with developmental disabilities and their
families help decide what services they should get and that they indeed
get the support and services they need. Service areas include education,
employment, health, child care, housing, protection and advocacy,
recreation, transportation, and quality assurance. ADD is part of the
Administration for Children and Families.

Center for Medicaid and Medicare Services (CMS)


CMS has two programs, Medicaid and the State Childrens Health Insurance
Program, that can help children and adults with disabilities get health
care coverage.

DisabilityInfo.gov
<http://www.disabilityinfo.gov/>

DisabilityInfo.gov has information about disabilities resources in the
federal government. Topics include jobs, education, housing,
transportation, health, income support, technology, community life, and
civil rights.

Maternal and Child Health Bureau (MCHB)
<http://mchb.hrsa.gov/>

MCHB promotes the health of children and mothers. It has programs in areas
such as children with special health care needs, newborn hearing
screening, child health and safety, and genetics. MCHB is part of the
Health Resources and Services Administration.

MEDLINEplus Health Information, National Library of Medicine
<http://www.nlm.nih.gov/medlineplus/>

MEDLINEplus, an online service of the National Library of Medicine, links
people to information about topics such as autism, cerebral palsy, hearing
loss, mental retardation, and vision impairment.

National Council on Disability (NCD)
<http://www.ncd.gov/>

NCD ensures that people with disabilities have the same opportunities as
people who do not have disabilities. It promotes policies and programs
that help people with disabilities live on their own, support themselves,
and take part in all aspects of society. NCD makes recommendations to the
President and Congress on issues that affect Americans with disabilities.

National Institutes of Health (NIH)
<http://www.nih.gov/>

Several institutes within NIH conduct and fund research about
developmental disabilities. They also offer information to the public and
educational programs for health professionals.

National Eye Institute (NEI)
<http://www.nei.nih.gov/>

NEI studies ways to prevent and treat eye diseases and vision problems and
to improve the lives of people with these conditions.

National Institute of Child Health and Human Development (NICHD)
<http://www.nih.gov/nichd/>

NICHD studies the impact that disabilities such as autism and mental
retardation have on peoples lives, as well as possible causes and
treatments of those disabilities.

National Institute on Deafness and Other Communication Disorders (NIDCD)
<http://www.nih.gov/nidcd/>

NIDCD studies hearing loss, deafness, and problems with speech and
language.

National Institute of Mental Health (NIMH)
<http://www.nimh.nih.gov/>

NIMH studies mental illness and behavior problems, including such
conditions as autism, attention deficit hyperactivity disorder, and
learning disabilities.

National Institute of Neurological Disorders and Stroke (NINDS)
<http://www.ninds.nih.gov/>

NINDS studies the causes, diagnosis, treatment, and prevention of brain
and nervous system disorders such as cerebral palsy and epilepsy.

National Institute on Disability and Rehabilitation Research (NIDRR)
<http://www.ed.gov/about/offices/list/osers/nidrr/index.html>

NIDRR promotes the participation of all people with disabilities in their
communities. It also helps communities provide opportunities and support
for people with disabilities. NIDRR focuses on studies related to topics
such as jobs, health, assistive technology, and independent living. NIDRR
is part of the U.S. Department of Education.

Office of Disability Employment
<http://www.dol.gov/odep/welcome.html>

The Office of Disability Employment works to increase job opportunities
for people with disabilities. It promotes access to education, training,
assistive technology and other support so that people with disabilities
can get and keep jobs. It helps businesses increase the number of work
options for people with disabilities. The Office of Disability Employment
is part of the U.S. Department of Labor.

Office of Special Education Programs (OSEP)
<http://www.ed.gov/about/offices/list/osers/osep/index.html>

OSEP works to improve the lives of children and youth with disabilities
from birth to age 21 through education and support services. OSEP
administers the Individuals with Disabilities Act (IDEA), the federal law
that supports special education and related services for children and
youth with disabilities. OSEP is part of the U.S. Department of Education.

Office on Disability
<http://www.hhs.gov/od/>

The Office on Disability oversees the implementation of federal disability
policies and programs. It works to remove barriers facing people with
disabilities so they can participate more fully in their communities. It
also fosters interactions between the U.S. Department of Health and Human
Services (of which it is a part), other federal agencies, state agencies,
local agencies, and private sector groups.

Rehabilitative Services Administration (RSA)
<http://www.ed.gov/about/offices/list/osers/rsa/index.html>

RSA helps people with disabilities get jobs and live more independently.
RSA is part of the U.S. Department of Education.

Additional Information Sources from This Website
<http://www.cdc.gov/ncbddd/dd/default.htm>
Monitoring Developmental Disabilities
Research about Developmental Disabilities
Prevention of Developmental Disabilities
Educational Materials
Developmental Disability Data Sets

DISABILITIES: DEVELOPMENTAL DISABILITIES:
National Center on Birth Defects and Developmental Disabilities (NCBDDD)

National Center on Birth Defects and Developmental Disabilities (NCBDDD)
Centers for Disease Control and Prevention
1600 Clifton Rd, Atlanta, GA 30333, U.S.A
Public Inquiries: 1-800-CDC-INFO (232-4636);
1-888-232-6348 (TTY)
24 Hours / Every Day -
cdcinfo@cdc.gov
<http://www.cdc.gov/ncbddd/>

Mission
The National Center on Birth Defects and Developmental Disabilities (NCBDDD)
promotes the health of babies, children, and adults, and enhances the
potential for full, productive living.

Our work includes identifying the causes of and preventing birth defects
and developmental disabilities, helping children to develop and reach
their full potential, and promoting health and well-being among people of
all ages with disabilities

Specific Topics

Birth Defects
Basic Facts
Prevention of Birth Defects
Folic Acid Helps Prevent Some Birth Defects
Preconception Care
Having a Healthy Pregnancy
Fetal Alcohol Syndrome - Preventing Alcohol Exposed Pregnancies
Lymphocytic Choriomeningitis Virus (LCMV) and Pregnancy
Diabetes and Pregnancy
Medication Use During Pregnancy and Breastfeeding
Genetics
Monitoring Birth Defects
Research
Developmental Disabilities
Autism Spectrum Disorders
Autism Information Center
Cerebral Palsy
Hearing Loss
Kernicterus
Mental Retardation / Intellectual Disability
Vision Impairment
Blood Disorders
Bleeding Disorders
Clotting Disorders - Thrombophilia
Thalassemia
Sickle Cell Disease
For Women
Surveillance
Laboratory Research
Hemochromatosis
Human Development
Attention-Deficit / Hyperactivity Disorder
Child Development
Disability and Health
Single Gene Disorders
- Duchenne/Becker Muscular Dystrophy
- Fragile X Syndrome
Early Hearing Detection and Intervention
Tourette's Syndrome
Women with Disabilities

Birth Defects

Birth Defects Home > Basic Facts

Basic Facts About Birth Defects
<http://www.cdc.gov/ncbddd/bd/facts.htm>

Frequently Asked Questions

What is a birth defect? Which are most common? Learn answers to these and
other frequently asked questions listed below...

What is a birth defect?
What are the most common birth defects?
What is my chance of having a baby with a birth defect?
Do genetic factors play a role in causing birth defects?
What causes birth defects?
Does alcohol cause birth defects?
Does smoking cause birth defects?
Do illegal drugs cause birth defects?
Does exposure to the MMR vaccine cause birth defects? Other vaccines?
When in pregnancy do birth defects happen?
What can I do to keep germs from harming my baby and me?
What kind of health care provider can help find out what caused my babys
birth defect?
Who coordinates the health care of my child who has a birth defect?
What does a genetic counselor do?
Where can I find a clinical geneticist or genetic counselor?
Where can I get information about my baby's birth defect?
How can I get in touch with parents of a child with the same birth defect
as my child?
What should I do to have a healthy pregnancy?
What is CDC doing to prevent and help find the causes for birth defects?

Birth Defects

Birth Defects Home > Basic Facts > FAQs

Birth Defects: Frequently Asked Questions (FAQs)
<http://www.cdc.gov/ncbddd/bd/faq1.htm#Whatisabirthdefect>

Q: What is a birth defect?

A birth defect is a problem that happens while the baby is developing in
the mothers body. Most birth defects happen during the first 3 months of
pregnancy.

A birth defect may affect how the body looks, works, or both. It can be
found before birth, at birth, or anytime after birth. Most defects are
found within the first year of life. Some birth defects (such as cleft
lip or clubfoot) are easy to see, but others (such as heart defects or
hearing loss) are found using special tests (such as x-rays, CAT scans, or
hearing tests). Birth defects can vary from mild to severe.

Some birth defects can cause the baby to die. Babies with birth defects
may need surgery or other medical treatments, but, if they receive the
help they need, these babies often lead full lives.

Q: What are the most common birth defects?

One of every 33 babies is born with a birth defect. A birth defect can
affect almost any part of the body. The well being of the child depends
mostly on which organ or body part is involved and how much it is
affected.

Many birth defects affect the heart. About 1 in every 100 to 200 babies
is born with a heart defect. Heart defects make up about one-third to
one-fourth of all birth defects. Some of these heart defects can be
serious, and a few are very severe. In some places of the world, heart
defects cause half of all deaths from birth defects in children less than
1 year of age.

Other common birth defects are neural tube defects, which are defects of
the spine (spina bifida) and brain (anencephaly). They affect about 1 of
1,000 pregnancies. These defects can be serious and are often life
threatening. They happen less often than heart defects, but they cause
many fetal and infant deaths.

Birth defects of the lip and roof of the mouth are also common. These
birth defects, known as orofacial clefts, include cleft lip, cleft palate,
and combined cleft lip and cleft palate. Cleft lip is more common than
cleft palate. In many places of the world, orofacial clefts affect about
1 in 700 to 1,000 babies.

Some birth defects are common but rarely life threatening, though they
often require medical and surgical attention. Hypospadias, for example,
is a fairly common defect found in male babies. In babies with
hypospadias, the opening of the urethra (where urine comes out) is not at
the tip of the penis but on the underside. Treatment depends on how far
away from the tip the opening is and can involve complex surgery. This
defect is rarely as serious as the others listed above, but it can cause
great concern and sometimes has high medical costs. It rarely causes
death.

These are only some of the most common birth defects. Two final points
are worth noting. First, genetic conditions, though not mentioned so far,
also occur often. Down syndrome, for example, is a genetic condition that
affects about 1 in 800 babies, but it affects many more babies who are
born to older women. Second, a woman who is pregnant may miscarry a baby
(fetus) early, before it is time for the baby to be born. This often
happens when the fetus has a severe birth defect. To know the true impact
of birth defects and how often they occur, we not only need to look at
babies born but also, if possible, look at all pregnancies.

Q: What is my chance of having a baby with a birth defect?

In the United States, about 3% of babies are born with birth defects.
Some women have a higher chance of having a child with a birth defect.
Women over the age of 35 years have a higher chance of having a child with
Down syndrome than women who are younger. If taken when a woman is
pregnant, certain drugs can increase the chance of birth defects. Also,
women who smoke and use alcohol while pregnant have a higher risk of
having a baby with certain birth defects. Other women have a higher
chance of having a baby with a birth defect because someone in their
family had a similar birth defect. To learn more about your risk of
having a baby with a birth defect, you can talk with a genetic counselor.
(To find a genetic counselor, see Where can I find a geneticist or genetic
counselor?) Also, to reduce your chances of having a baby with a birth
defect, talk with your health care provider about any medicines that you
take, do not drink alcohol or smoke, and be sure to take 400 micrograms of
the B vitamin folic acid every day. It is the amount of folic acid found
in most multivitamins.

Q: Do genetic factors play a role in causing birth defects?

Yes, in some but not all cases. Changes in the genes can cause certain
birth defects in infants. Genes tell each cell in the body how to combine
with other cells to form parts of the body. For example, genes tell
certain cells to make the heart, the kidneys, or the brain, and they tell
other cells to make our physical features, like green eyes or brown hair.
Genes also tell the cells how to work in the body. Genes give instructions
for cells in our heart to beat, our stomach to digest food, our muscles to
push and pull, and our brain to think.

Genes combine with many other genes to make chromosomes. Changes in single
genes, groups of genes, or entire chromosomes can sometimes cause birth
defects. These genetic changes might happen only in the infant, or they
might pass down from one or both parents. Sometimes, there are other
relatives in the family with the same birth defect, but not always.

Factors other than genetics can also increase the chance of having a baby
with a birth defect. (See Does alcohol cause birth defects? Does smoking
cause birth defects? Do illegal drugs cause birth defects?). In some
cases, the mother or baby has genes that are easily affected by factors
outside the body that cause birth defects. In this case, genes and
environment work together to cause a birth defect.

Medline Plus: Developmental Disabilities
U.S. National Library of Medicine
8600 Rockville Pike, Bethesda, MD
20894
National Institutes of Health
Department of Health & Human Services
<http://www.nlm.nih.gov/medlineplus/developmentaldisabilities.html>

Developmental Disabilities

Developmental disabilities are birth defects that cause lifelong problems
with how a body part or system works. They include

Nervous system disabilities affecting how the brain, spinal cord and
nervous system function. They cause mental retardation, including Down
syndrome and fragile X syndrome. They also cause learning and behavioral
disorders, such as autism

Sensory-related disabilities, which can cause vision, hearing and sight
problems

Metabolic disorders such as phenylketonuria, which affect how your body
processes the materials it needs to function

Degenerative disorders such as Rett syndrome, which might only become
apparent when children are older and can cause physical and mental
problems

Most developmental disabilities have no cure, but you can often treat the
symptoms. Physical, speech and occupational therapy might help. Special
education classes and psychological counseling can also help.

National Institute of Child Health and Human Development

Related Topics

Autism
Disabilities
Down Syndrome
Fetal Alcohol Syndrome
Learning Disorders
Children and Teenagers
Mental Health and Behavior

National Institutes of Health

The primary NIH organization for research on Developmental Disabilities is
the National Institute of Neurological Disorders and Stroke

Website Contents

Overviews

Developmental Disabilities(American Psychiatric Association)

Developmental Disabilities - An Overview(American Academy of Pediatrics)

Latest News

Gene Mutation Tied to Majority of Cases of Mental Retardation(02/04/2009,
HealthDay)

Prevention/Screening

Child Development: Developmental Screening(Centers for Disease Control and
Prevention)

Newborn Screening Tests(March of Dimes Birth Defects Foundation)
Also available in Spanish

Coping

Mental Retardation: Learning How to Help Your Child(American Academy of
Family Physicians)
Also available in Spanish

Mental Retardation: What Caregivers Need to Know(American Academy of
Family Physicians)
Also available in Spanish

Specific Conditions

Angelman Syndrome(National Institute of Neurological Disorders and Stroke)
- Short Summary

Developmental Dyspraxia(National Institute of Neurological Disorders and
Stroke)

Intellectual Disability(Centers for Disease Control and Prevention)

Intellectual Disability (formerly Mental Retardation)(National

Dissemination Center for Children with Disabilities)

Multisystem Developmental Disorder(Developmental Behavioral Pediatrics
Online)

Williams Syndrome(National Institute of Neurological Disorders and Stroke)

Related Issues

Dental Care Every Day: A Caregiver's Guide(National Institute of Dental
and Craniofacial Research)

Individualized Education Plans (IEPs)(Nemours Foundation)

Occupational Therapy(Nemours Foundation)

Partnering with Your Child's School: A Guide for Parents(HSC Foundation) -
Links to PDF
Also available in Spanish

Physical Therapy(Nemours Foundation)

Sexuality and Intellectual Disability(American Association on Intellectual
and Developmental Disabilities)

Speech-Language Therapy(Nemours Foundation)

What Is a Developmental-Behavioral Pediatrician?(American Academy of
Pediatrics) - Links to PDF

Videos

Baby Steps: Learn the Signs. Act Early(Centers for Disease Control and
Prevention)

Clinical Trials

ClinicalTrials.gov: Developmental Disabilities(National Institutes of
Health)

ClinicalTrials.gov: Mental Retardation(National Institutes of Health)

Genetics

Genetics Home Reference: 1p36 deletion syndrome(National Library of
Medicine)

Genetics Home Reference: Allan-Herndon-Dudley syndrome(National Library of
Medicine)

Genetics Home Reference: Angelman syndrome(National Library of Medicine)

Genetics Home Reference: Aspartylglucosaminuria(National Library of
Medicine)

Genetics Home Reference: Coffin-Lowry syndrome(National Library of
Medicine)

Genetics Home Reference: Cornelia de Lange syndrome(National Library of
Medicine)

Genetics Home Reference: Costello syndrome(National Library of Medicine)

Genetics Home Reference: Cri-du-chat syndrome(National Library of
Medicine)

Genetics Home Reference: Emanuel syndrome(National Library of Medicine)

Genetics Home Reference: FG syndrome(National Library of Medicine)

Genetics Home Reference: Mowat-Wilson syndrome(National Library of
Medicine)

Genetics Home Reference: Rubinstein-Taybi syndrome(National Library of
Medicine)

Genetics Home Reference: Smith-Lemli-Opitz syndrome(National Library of
Medicine)

Genetics Home Reference: Smith-Magenis syndrome(National Library of
Medicine)

Genetics Home Reference: Williams syndrome(National Library of Medicine)

Genetics Home Reference: Wolf-Hirschhorn syndrome(National Library of
Medicine)

Research

Birth Defects and Developmental Disabilities(National Institute of Child

Health and Human Development)

Mental Retardation(National Institutes of Health) - Links to PDF

Journal Articles

References and abstracts from MEDLINE/PubMed (National Library of
Medicine)

Article: MAP'ing CNS development and cognition: an ERKsome process.

Article: Parenting behavior is associated with the early neurobehavioral
development of...

Article: Neuropsychological performance 10 years after immunization in
infancy with thimerosal-containing...

Developmental Disabilities -- see more articles

Mental retardation -- see more articles

Dictionaries/Glossaries

Kids' Quest on Disability and Health: Glossary(Centers for Disease Control
and Prevention)

Directories

State Councils on Developmental Disabilities(Administration on
Developmental Disabilities)
State Resources (Disability-Related)(National Dissemination Center for
Children with Disabilities)

Organizations

Administration on Developmental Disabilities
National Center on Birth Defects and Developmental Disabilities(Centers
for Disease Control and Prevention)
Also available in Spanish
National Dissemination Center for Children with Disabilities
National Institute of Neurological Disorders and Stroke
Also available in Spanish

Law and Policy

Americans with Disabilities Act - ADA Home Page(Dept. of Justice)
Categories of Disability under IDEA Law(National Dissemination Center for
Children with Disabilities)
Also available in Spanish
Services in School for Children with Special Needs: What Parents Need to
Know(American Academy of Child and Adolescent Psychiatry)

Statistics

Disability Characteristics(Bureau of the Census)

Children

Coping with Disaster: Suggestions for Helping Children with Cognitive
Disabilities(Administration for Children and Families)
Kids' Quest on Disability and Health(Centers for Disease Control and
Prevention)
Mental Retardation(Nemours Foundation)

Seniors

Mental Retardation(AGS Foundation for Health in Aging)
Older Adults and Their Aging Caregivers(American Association on
Intellectual and Developmental Disabilities)

DISABILITIES: DEVELOPMENTAL DISABILITIES :
CHILDREN: DISABILITIES AND SPECIAL NEEDS:
Eunice Kennedy Shriver.
National Institute of Child Health and Human Development.
National Institutes of Health.
Developmental Disabilities

Eunice Kennedy Shriver.
National Institute of Child Health and Human Development.
National Institutes of Health.
Developmental Disabilities
<http://www.nichd.nih.gov/health/topics/developmental_disabilities.cfm>

Developmental Disabilities

What are developmental disabilities?

Developmental disabilities are birth defects related to a problem with how
a body part or body system works. They may also be known as functional
birth defects. Many of these conditions affect multiple body parts or
systems.

What are the different types of developmental disabilities?

Nervous system disabilities

These are birth defects that affect the functioning of the brain, spinal
cord, and nervous system, which can impact intelligence and learning.
These conditions can also cause problems such as behavioral disorders,
speech or language difficulties, convulsions, and movement disorders.
Some of the common nervous system disabilities include:

Mental retardation - The term mental retardation describes a certain range
of scores on an IQ (intelligence quotient) test. Mental retardation can
result from a number of different conditions, including (but not limited
to):

Down syndrome - a set of mental and physical characteristics related to
having an extra copy of Chromosome 21.

Fragile X syndrome- the most common inherited form of mental retardation
caused by a defect in a specific part of the Fragile X Mental
Retardation-1 gene that causes the body to produce low amounts or none of
a certain protein. Without the protein, the brain doesnt develop
normally.

Autism Spectrum Disorders - a range of problems that can affect a person's
communication skills, social skills, and intelligence. Because autism is
diagnosed on a spectrum, people with this condition can have mild symptoms
or severe symptoms; but they all have a type of autism.
Sensory-related disabilities Sensory-related problems are often a key part
of complex birth defect patterns. For instance:

Children with congenital rubella are likely to be deaf, and to develop
cataracts of the eyes.

Children with Williams syndrome have trouble seeing spatial relationships
between objects around them.

Those with Fragile X syndrome are often very sensitive to loud noises;
they may overreact or have outbursts in reaction to such sounds.

Metabolic Disorders

This group of functional birth defects affects a person's metabolism,
which is the way the body builds up, breaks down, and otherwise processes
the materials it needs to function. For example, how your body breaks down
sugar to create energy is a metabolic process. Two commonly known
metabolic disorders include:

Phenylketonuria (PKU) - a condition in which a problem with a specific
enzyme, a protein that speeds up certain chemical reactions, causes mental
retardation.

Hypothyroidism - a hormonal condition that, if left untreated in an
infant, can cause mental retardation.

Degenerative Disorders

Some infants born with degenerative disorders appear normal at birth, but
then lose abilities or functions due to the in condition. In these cases,
the defect is usually not detected until an older age, when the child or
person starts to show signs of loss of function. Some degenerative
disorders are the result of metabolic disorders.

Degenerative disorders can cause physical, mental, and sensory problems,
depending on the specific defect. Rett syndrome is an example of a
degenerative birth defect. This disorder, which usually affects girls, is
most often caused by a specific genetic abnormality.

What are the treatments for developmental disabilities?

Many developmental disabilities have no cure, but there are often ways to
treat the symptoms. For example:

Children with Down syndrome can often benefit from speech therapy,
occupational therapy, and exercises for gross and fine motor skills. They
might also be helped by special education and attention at school.
Surgery can also help correct heart defects.

People with Fragile X syndrome can get help to reduce or eliminate some of
the learning, physical, social and emotional, speech and language, and
sensory problems common in Fragile X. The sooner those with Fragile X get
help, the more they can learn and the better their outcomes.

There are a variety of treatment options to help with the symptoms of
autism spectrum disorders. This may include behavioral, occupational,
physical, and speech-language therapy. In addition, educational
specialists can help guide the childs school experiences.
Girls with Rett syndrome can be treated for some of the problems
associated with the condition. These treatments generally aim to slow the
loss of abilities, improve or preserve movement, and encourage
communication and social contact. Treatments may include help from
physical therapists, occupational therapists, and speech-language
therapists. Other options, such as medication or surgery are also
effective for treating some of the symptoms of Rett syndrome.
Treatment for hypothyroidism, or underactive thyroid, includes daily oral
hormone treatment.

The most effective treatment for PKU is a special diet that carefully
limits the protein phenylalanine (Phe). People with PKU who are on this
diet from birth or shortly thereafter develop normally and usually have no
symptoms of PKU.

Where can I get more information on developmental disabilities?

Facts about Down syndrome
Autism Overview: What We Know
Families and Fragile X Syndrome
Rett Syndrome

March Agenda, Feb. Minutes

You're reading http://debacabhpclc10.blogspot.com/

De Baca Local Collaborative Meeting

Monday, March 16, 2009

12:00pm 

Agenda 
 12:00pm Welcome & Introductions 
12:05pm Minutes from February 16, 2009 meeting 
12:10pm Old Business
Telemedicine & Crisis Intervention Training Update
Legislative Priorities
Letter of Readiness/LC 10 Functioning
12:40pm New Business
ENMU Bridging for Meetings
12:50pm Other
BHPC Update
CAT Update
1:00pm Meeting Adjournment 

=====================

Feb. Minutes

De Baca local Collaborative Meeting

Monday, February 16, 2009
12:00pm
Courthouse Annex Meeting Room 

Members present were Jesse Chavez, CAT Team; Loretta Turnbow, MHR; Paul Gauna, Mary Ryan, Lee Ann Weber, Clora Hamon, Kathy Mickle, Marsha Webb, Rogi, Brenda Yarbrough, Family Member/BHPC; Zack Yarbrough, Hailey Crocker, Amanda Crocker, Emory Crawford, Consortium; Gail Hinderliter, Consortium; Bill Martin, ENMU, Gloria Salas, Lisa Walraven, LC 10 Coordinator, Cheryl Butterfield, De Baca Health Council (12:45pm) and Marcia Prophet, HSD (1:00pm).  

Emory Crawford called the meeting order with introductions.  

The minutes from the January 23, 2009 meeting were reviewed. Brenda Yarbrough moved to accept the minutes. Loretta Turnbow seconded. Motion passed. 

Old Business- 

Local Collaborative Assessment Tool- Jesse Chavez stated that this item would be tabled as Marcia Prophet is not at the meeting. 

Telemedicine/Crisis Intervention Training- Telemedicine-Brenda reported that she sent the letter to the De Baca Family Practice Clinic with LC 10 input for telemedicine. Emory will follow up with Dusti Scoffield. Crisis Intervention-Lisa reported that Alida is working to get the Crisis Intervention training in Fort Sumner, but must have 15-20 participants for the four hour free training. Alida will be talking to the mayor and EMS in Fort Sumner. If not enough responders would have to travel to Quay County. Alida is looking toward middle of March for training. Emory added that training is expensive and often hard for first responders to get out of town to attend trainings.  

Crisis Fund Update- It was reported that we are waiting to hear from other counties. Rogi still willing to look for grants if there is a possibility of funding for transportation for her. 

Legislative Priorities- Jesse reported process for the Legislative priorities would be sent out in March. One person would be responsible for inputting data. 

New Business- 

February Core Group- Jesse reported that it discovered this morning that all county chairs will be in attendance at the Regional Drug and Alcohol Substance (Consortium) on the same date as the February core meeting. The county chairs are all sit on the board for the Consortium. Harding and Quay counties were polled and both are okay with cancelling the February LC 10 Core group meeting. Brenda addressed that she has concerns with providers being the chairs for local collaboratives. Rogi feels monthly meetings are important, adding rural areas have important feedback to get to State level. She said consumers have different feedback from professionals. Rogi added communication is important and would be willing work on a list serve, like yahoo and create a blog, need e-mail addresses needed for list serve. Lisa reported that she only blind carbon copies e-mails due to some had asked to be private. She will send out to group to see who wants public or private mail. Rogi added she had sent a letter out that she wanted to go to group and it was not done. Lisa reported that Jesse said to go through county chairs and had not received response from Emory. It was decided no need for meeting by group in February. Rogi will work on blog and Lisa will find out who wants addresses public. 

Letter of Readiness/LC 10 Functioning- Jesse reported that according to letter of readiness each county had one vote. No consumer involvement at first and now there is more involvement by consumers. He reported collaboratives need to review the letter of readiness and think about by-laws. He added that most collaboratives piggybacked of health councils at first. There was round table discussion that the letter was to redesign the way behavioral health was viewed. Emory suggested that Brenda and Rogi be on a subcommittee with the other counties to work on by-laws and consumer attendance and involvement. Brenda feels stipends will help get consumers at meetings. Emory added possibly helping with recruitment in other counties. Lisa will check with Quay County to see if the need help in flyers, etc. for their monthly meeting. Emory suggested adding this item to the agenda for the next core group meeting. 

Health Fair/Promotional Items-Amanda Crocker asked when the Health Fair is. Cheryl Butterfield reported that it will be held on March 27, 2009 from 8:00am-1:00pm at the PIT. Lisa said that she would like to order first responder tip sheets to hand out at the LC 10 booth. The group agreed to the tip sheets for the Health Fair. Brenda asked about Amanda helping at the booth again. Rogi moved that Amanda help at the booth for $10 per hour. Kathy seconded. Motion passed. 

Other-

BHPC Update- Brenda reported the BHPC will meet next Wednesday. The subcommittees did not send out updates. 

CAT Update- Jesse advised that updates regarding Legislative priorities were addressed earlier.

Rogi addressed that she has concerns over community treatment by the library and grocery store. She has trouble dealing with loud noises and being yelled at due to post traumatic stress disorder. Rogi said the BH council should be the place for tolerance and acceptance. She feels that people often afraid because they don’t understand. Rogi addressed that she does not want to see people stigmatized by public officials due to gender identity issues and those that are not heterosexual. These people have the right to same care as all others in society. She would like to research workshops, etc about tolerance, reducing fear and hostility. Brenda asked if Marcia Prophet could get a copy of the Anti-stigma information to Rogi. She asked Emory about including this with Telemedicine. Rogi says she feels that she has been living in a closet and must be true to herself. Brenda says she supports and suggested getting with Marcia for anti-stigma information. 

Marcia Prophet passed out the consumer assessment tool, reporting that is a 40 question survey to find out what people know about behavioral health collaboratives. This is part of a grant mandate to help local collaboratives. They would like to come twice a year to do assessment and report back quarterly to report progress and see where challenges are. Brenda asked about the results of the last assessment. Marcia responded that there were not adequate enough numbers to make sense for data. They are trying to reorganize after losing personnel.  

Meeting adjourned at 1:30pm 
Minutes taken by-
Lisa Walraven
LC 10 Coordinator